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Creating a Registry of Loeys-Dietz Research

Over the past six months, volunteers Tom Galli and Lindsay Parsons have been building a database of all the research on Loeys-Dietz syndrome, and of the researchers and collaborators involved. Approximately 2,500 articles have been published across 250 medical journals in 25 countries. This database will be an important building block for the Young Investigators’ Award Program. Thank you for all your hard work!